Stourbridge carer on how poor experiences as a parent led to finding her calling as a Dudley advocate at VoiceAbility
A parent and carer from Stourbridge who was not listened to when her children needed support has shared how that has led to a career in advocacy – where it’s now her job to ensure people’s voices are heard.
Diane Williams works for voice and rights charity VoiceAbility’s Dudley team, in a role that many know little about.
Speaking during Advocacy Awareness Week, the mother-of-three has been reflecting on the ‘why advocacy’ theme, and how her experiences as a parent led her to become a professional, independent advocate.
“My daughter has learning disabilities and autism spectrum disorder (ASD), while my twin sons also have ASD, and one of them now struggles with refractory epilepsy,” said Diane.
“Since they were young, professionals often did not listen to me regarding my children’s needs and concerns about their development. As they grew older, those professionals did not listen to my children either.
“I served as their voice when they were unable to find theirs. Throughout their childhood, we faced numerous challenges related to mental health, proper support from services, and a significant lack of support for our family as a whole.”
Diane recalls how she felt like she was “in a bubble” as a carer for her children, and that “nobody was listening”.
“One day I decided I needed to do something for me, to be able to get my voice out there, which in turn will help my children and others,” said the 54-year-old.
In 2018 Diane started a voluntary role, supporting people in Dudley with advocacy needs which did not fall under specific legislation like the Care Act or the Mental Health Act – where a qualified advocate is required.
Two years later – just before the Covid-19 pandemic hit – she became a Care Act advocate and now, at VoiceAbility, she also specialises in safeguarding issues and supporting people who have their freedom restricted or denied in places like care homes and hospitals.
VoiceAbility’s free advocacy service in Dudley also includes supporting people detained under the Mental Health Act, and those who need support to make a complaint about their NHS treatment or care.
“I help people find their voice and challenge services whenever possible, which has sometimes been difficult as a parent since I often felt unheard,” said Diane.
“I love my role. I do it because a lot of people out there are not being heard. Systems are failing people, and some professionals in health and social care aren’t listening.
“As an advocate, it’s about being on the side of the person. But I say to my clients ‘I’m not here to tell you what to do, I’m here to give you choices so you can make your own decisions’.
“One of the best things about being an advocate is supporting people to achieve independence and the outcomes they seek. And to see the smiles and relief which comes with that. Ultimately, it’s about justice.”
Diane says things have changed for her children, too.
“Today, my adult children are thriving,” she said.
“One has held down a job, passed their driving test, and my sons have even travelled abroad together. They have all gained independence and have become remarkable young adults, making me extremely proud.
“While they still need some support to have their voices heard, they occasionally express themselves well, as I have taught them.”
If you’re interested in volunteering or becoming an advocate, visit www.voiceability.org/get-involved.
For more information about the free advocacy support available in Dudley visit www.voiceability.org/dudley. To make an enquiry or referral, you can also email helpline@voiceability.org or call free on 0300 303 1660.
