'Race against time': £1m raised for six-year-old Wolverhampton boy with rare condition
Partaap Singh, a six-year-old Wolverhampton boy, is battling Juvenile ALS.
A GoFundMe page has raised £1,051,563 for a young six-year-old Wolverhampton boy named Partaap Singh who is battling a rare condition called Juvenile ALS.
A few weeks ago, on September 9, the family set up the page called ‘Race against time to save our 6 year old son, Partaap Singh’.
His parents spoke of wanting to find the best treatment for their “brave, bright, confident six-year-old who lights up every room he walks into”.
His mother, Gurbinder Kaur said: “Thanks to all of you, we've passed our £1 million goal to give Partaap a real chance. We are now closing this fundraiser, so please share that no further donations or new events are needed.”
The money raised will go towards funding for American scientists who are designing, developing, and delivering a potential ASO treatment.
The community can keep up to date with Partaap’s journey by following the Partaap Singh (iampartaapsingh) Instagram page.
In January 2026, the six-year-old boy was diagnosed with the the rare condition Juvenile ALS (amyotrophic lateral sclerosis), also known as MND (motor neuron disease).
This diagnosis was given to his family after lots of hospital visits that were triggered by his parents noticing that Partaap struggled to walk, stand and cover long distances.
Nowadays, Partaap struggles to walk more than a few minutes, to climb stairs, to balance, and to stand up from sitting.
The family has said that every penny will go towards Partaap's care.
Any leftover money will go towards a charity that will support other families facing similar rare conditions.
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